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(N.B.: This is a "nearly" exact copy of an article that we recently published in Mental Retardation. It has not been rigorously proof-read so there are some typos and some of the keystroke sequences in Table 2 may be slightly inaccurate. Please write if you want the actual article. -S.H.W.).
MENTAL RETARDATION Vol.34, No.4, 220-230,
August 1996 A Validated Case Study of Facilitated Communication Michael J. Salomon Weiss, Sheldon H. Wagner, and Margaret
L. Bauman Abstract: The case of a 13-year-old
boy with autism, severe mental retardation, and a seizure disorder who
was able to demonstrate valid facilitated communication was described.
In three independent trials, short stories were presented to him, followed
by validation test procedures with an uninformed facilitator providing
physical support to the subject's arm. In Trials 1 and 3, several specific
answers were provided that clearly indicated that the young man, not
the uninformed facilitator, was the source of the information. Moreover,
some responses seemed to imply that the subject was employing simple
inferential and abstract reasoning. This case study adds to the small,
but growing number or demonstrations that facilitated communication
can sometimes be a valid method for at least some individuals with developmental
disabilities. Recent evidence has been reported by a number of investigators
implying that individuals previously diagnosed with significant developmental
disabilities-including profound mental retardation secondary to cerebral
palsy, autism, and other related disorders-may have remarkable literacy
and intellectual abilities that have been masked by their disabilities
(Biklen, 1990,1992; Biklen & Schubert, 1991; Calculator & Singer,
1992; Cardinal, Hanson, & Wakeham, 1996; Crossley, 1992; Crossley
& Remington-Gurney, 1992; Heckler, 1994; Intellectual Disabilities
Review Panel, 1989; Vasquez, 1994). These competencies were reportedly
demonstrated by means of facilitated communication, a method of communication
in which a "facilitator" holds the hand, wrist, arm, or in some cases
only touches the shoulder, of the individual who spells out his or her
thoughts on a keyboard or alphabet board. A small number of individuals
who have demonstrated this surprising literacy have been reported to
become subsequently independent in their ability to express themselves
through these augmentative methods (Karp, 1993; Karp, Biklen, &
Chadwick, 1993). However, the majority of individuals who are believed
to be valid communicators via facilitated communication require on-going
physical assistance in their use of the keyboard. The need for physical support, combined with apparent
unexpected and remarkable literacy, has resulted in much controversy
around the true source of the communication. Are the individuals with
disabilities actually communicating, or are their responses consciously
or unconsciously being influenced by the person offering the physical
support? Several empirical studies have shown significant facilitator
influence in many cases (cf. Green & Shane, in press; Jacobson,
Mulick, & Schwartz, 1995; Rimland & Green, 1993; Shane, 1994).
However, in a small number of cases, evidence indicates that facilitated
communication may be a valid means of communication for some individuals
with disabilities (Calculator & Singer, 1992; Cardinal et al., 1996;
Crossley, 1992; Heckler, 1994; Intellectual Disabilities Review Panel,
1989; Karp, 1993; Karp et al., 1993; Queensland Report on Facilitated
Communication, 1993; Rimland & Green, 1993; Sheehan, 1993; Sheehan
& Matuozzi, 1994; Vasquez, 1994), and this evidence demands further
exploration of the phenomenon of facilitated communication. The following account offers evidence of valid facilitated
communication in two of three independent information-passing procedures
from a 13-year-old boy diagnosed with autism. These procedures involved
(a) the story phase, in which a short story was read to the boy with
the uninformed facilitator out of the room; (b) a consolidation phase,
in which the boy was presented with questions about the story by the
experimenter who originally read the story to him; and © the test phase,
in which the boy answered questions about the story with physical support
given by the uninformed facilitator. The second and third trials involved
the presence of third-party "referees," whose presence offered independent
verification of the procedures and results. Method Participants Kenny was a 13.58-year-old boy at the date of the first
test trial. His developmental status independent of his performance
with facilitated communication was characterized by a diagnosis of autism,
severe mental retardation, and a history of seizures. His most recent
formal psychological evaluation, performed when he was 10 years of age
by a school psychologist, resulted in a Full-Scale IQ of 31 (36-month
age equivalence) on the Stanford-Binet Intelligence Scale. Results on
the Vineland Adaptive Behavior Scales (Sparrow, Balla, and Cicchetti,
1984) can be found in Table 1. As shown in this table, these scores
either he]d constant or improved slightly when the Vineland was re-administered
16-months later, and again when Kenny was 15.75 years of age. (Given
the limited improvement that Kenny showed on the Vineland between the
first and second administrations, we repeated the scales when Kenny
was 15.75 years of age. Our intention was to reveal the limits of Kenny's
improvement discounting any alleged abilities associated with facilitated
communication. Indeed, the gap between his Vineland profile and his
chronological age [CA] continued to grow significantly wider.) Kenny's
verbal production at the time of the facilitated communication testing
procedures was almost entirely echolalic, perseverative, and/or seif-stimulatory
in nature (he would often repeat words such as "fishy-fishy" or "NBIS-NBIS"
(the acronym of a local bank), with no apparent meaning attached to
these utterances). He had fewer than 10 words that he occasionally used
functionally (e.g., he would say "soup" when hungry, call out "daddy"
when trying to gain adults' attention). These words were neither used
frequently nor precisely. In addition, Kenny was inconsistently able
to say aloud brand names of products when he saw the logo or labels,
such as "Old Milwaukee," "Honda," "McDonald's," and others. However,
his ability to identify these words seemed to decrease precipitously
when they were typed or written independently of the actual label or
logo. Kenny's complete functional expressive language vocabulary assessed
when he was 13.5 years old was as follows (perceived meaning in parentheses).
help me (used for assistance in dressing and use of toilet
and occasionally for other self-help needs); coke (used when requesting
a drink), coat on (used when requesting an automobile ride), truck
(also used when requesting an automobile ride), bus (used at school,
seems to be a question like "Is it time to go home?), no (seems
to be used appropriately in a variety of situations), headphones (used
to request music/tapes), soup (used to request something to eat), and
daddy (used to elicit adult attention; also seemed to be used to express
"yes"). Despite his appearance of severe cognitive and functional
impairment, Kenny had been integrated into regular education classes,
and his family and primary facilitator at school indicated that he was
successfully completing Grade 6, and subsequently Grade 7 academics
with the use of facilitated communication and was reported to be maintaining
an A to B grade average. The uninformed facilitator in the protocol was Kenny's
1-to-I school teacher, who accompanied him throughout his regular school
day (approximately 30 hours weekly) and had been working with Kenny
for approximately 15 months prior to the first experimental session.
In fact, this individual first introduced Kenny to regular use of facilitated
communication. Kenny and his facilitator typically use facilitated communication
frequently and intensively throughout the 6-hour day, including lengthy
writing assignments, homework, and other related school work. Her initial
exposure to facilitated communication consisted of (a) attending a small
number of seminars in which proponents of facilitated communication
presented their subjective views of how to introduce and promote the
use facilitated communication and (b) spending time developing the technique
with Kenny. When asked how they developed their use of facilitated communication,
the facilitator indicated that she and Kenny simply "figured it out
together day by day." In addition, the facilitator had several opportunities
to use the technique with other individuals alleged to be competent
with facilitated communication during this period. Hence, she had a
great deal of both depth (i.e., amount of time using facilitated communication
with Kenny) and breadth (i.e., number of different individuals facilitated)
of experience by the beginning of the current protocol. The experimenter in the protocol (the first author)
had been a consultant for Kenny's school program for approximately one
year prior to Kenny's introduction to facilitated communication. It
is noteworthy that the experimenter was originally quite skeptical about
facilitated communication, as can be seen from the following newspaper
account: Michael Weiss, a clinical psychologist who has worked
with developmentally disabled children in New Bedford, is also concerned
about facilitated communication. "There's a rich tradition in how we
judge whether something is true. . . . It gets reviewed by peers and
has to pass a certain standard," he said. "What I'm unnerved about with
the facilitated communication people is that there's almost a refusal
to adhere to this standard." Asked why he thinks Dr. Biklen and company
won't do such studies, Dr. Weiss replied, "What rings true in my ears
is that the thing is a bloody hoax. (Experimental technique, 1992)
Indeed, there was a great deal of pressure applied
by the experimenter for validation of facilitated communication, which
culminated in the following protocol (see Weiss & Wagner, in press,
for an expanded account of the events leading up to these validation
procedures). The experimenter's only experience with facilitated
communication prior to the following protocol was attendance at one
seminar introducing the technique and extensive conversations with individuals
using it. In addition, although the experimenter had numerous opportunities
to serve as a facilitator with Kenny and others prior to the protocol,
he had not developed a subjective sense of competence as a facilitator,
nor could he give a first-hand endorsement or account of what the technique
"feels like." Conversely, the experimenter could not discern his own
intentional manipulation of Kenny's hand when serving as facilitator.
Referees were used in the second and third experimental
sessions to independently verify that the facilitator was indeed uninformed
of the story contents being presented to Kenny. During the second session
the second author served as referee, and during the third session the
referee was a television producer from medical News Network (a cable
TV news service pursuing a story about facilitated communication). During
the third session the TV producer-referee both wrote the short story
used as the probe information during the protocol (assuring no prior
exposure of the story to the facilitator) and supervised the facilitator's
departure and return to Kenny (assuring no opportunity for the facilitator
to hear the story). Materials and Apparatus Kenny was evaluated on three different occasions during
which a short story was presented. These stories were modeled after
those used by Kohlberg (1983) in his studies of moral development and
are shown in Table 2. These stories were chosen because they were relatively
short, contained several specific facts, were cross-culturally meaningful,
and had a "moral" to the story, which would allow for the possibility
of inferential descriptions of content. The first two stories were written
by a research assistant, and the third story was written by a television
producer from Medical News Network. Kenny's responses were
recorded on the same word processor with a standard keyboard. Procedure Three independent trials of information passing were
performed. In each trial the young man was presented with (a) the story
phase, in which a story was read aloud by the experimenter while being
typed into the word processor (in Kenny's view) and then read aloud
a second time. (Prior to the initial story presentation, the test facilitator
was escorted far out of the room to ensure that she was unable to see
or hear any of the information presented); (b) a consolidation phase,
in which the boy was questioned about the story by the experimenter,
who served as a facilitator to elicit answers to the questions; and
© the test phase, in which the boy answered questions about the story
that were presented verbally by the experimenter (who always stood behind
and out of view of Kenny and the facilitator), with physical support
given immediately at the wrist by the uninformed facilitator. (We make
no attempt to describe the nature of the physical support being offered
by the facilitator, other than to say that she supported beneath Kenny's
left wrist with her cupped open left hand and that she indicated that
"resistance" was offered to Kenny's movement. This technique is consistent
with descriptions offered by Crossley and others. However, the technique
has not been sufficiently studied to give an accurate account of the
underlying biomechanics involved.) As indicated previously, the experimenter had no subjective
feeling of competence as a facilitator, and the consolidation phase
was not intended to represent any type of evidence of validation. Hence,
no conclusions may be drawn from responses during consolidation. Rather,
we began these procedures not knowing what was necessary to assure that
Kenny was paying attention to the story. We included the consolidation
phase to give Kenny additional opportunities to hear questions similar
to those that would be posed during the test phase and because he seemed
more attentive when the experimenter acted as a facilitator. During all test phases, there was no feed-back of any kind after each response (the transcripts of all sessions shown in Table 2 are literal accounts of everything stated by the experimenter [indicated in "lowercase"] and typed by Kenny with the assistance of a facilitator [INDICATED IN UPPER-CASE). As previously noted, third-party referees were included during Trials 2 and 3; this procedure offered further independent verification that the facilitator could not hear the initial presentation of the probe stories; we are, therefore, referring to her as an uninformed facilitator. Trials 1 and 3 were conducted in the same quiet classroom at Kenny's school; Trial 2 was conducted at the home of Kenny's primary facilitator, who served as the uninformed facilitator during all test trials. All
sessions were videotaped. Results Story Content As shown in the column entitled "Test Responses" in
Table 2, Kenny was highly accurate in his responses to questions during
the first and third trials with the physical support of an uninformed
facilitator. During Trial 1, there were three characters in the story,
and each was named correctly, as was the game played, the location of
the game, and events that took place during the game. Results from Trial
3 showed similarly high levels of precision. Kenny named the characters in the story with one incorrect
name ("BOB JIM" rather than Tom and Jim). All other responses
were precisely accurate, including the object of desire in the story,
how the object was procured, and the subsequent events. Responses during Trial 2 were inaccurate, unclear,
or incorrect to the questions posed. As shown in Table 2, Kenny indicated
the character's age as "13" (the actual age in the story was 12). Similarly,
he indicated the character in the story had "5DOLLARS" (the explicitly
correct answer to the question was 20 dollars). However, in the probe
story it is stated that "She managed to save up the fifteen dollars
the ticket cost, plus another five dollars.. . She bought a ticket and
told her mother she had only been able to save five dollars." Hence,
this response was in part correct. The response to the question "What
was the money for?" was incorrect (Kenny's response was "A PRESENT";
the correct response was to buy a concert ticket). The session was terminated
after the following questions and statements were made through facilitated
communication, "DOES SHELDON [referee l] REALLY BELIEVE... WHY DID HE
MAKE HIS DAUGHTER GO WITH YOU.. DOES HE THINK WE CHEATED THE LAST TIME...
I AM NERVOUS." Clearly, it is possible that these words came from the
uninformed facilitator and not Kenny. However, in light of the previous
validation experience with Kenny, as well as concerns for his apparent
discomfort, the session was terminated. To fully appreciate the accuracy of these responses,
it is useful to recognize that the probability of "guessing" any correct
answer (by the uninformed facilitator) is 1 divided by the number of
possible responses (or 1/number of responses). Thus, to the question
who was in the story, there could be literally hundreds of possible
responses, with a corresponding probability of "1/hundreds." This is
likewise the case with other questions such as "What game did they play?"
(Trial 1) (e.g., Monopoly, Nintendo, football, chess) or to the question
"Somebody wanted something real bad in the story. What did they want?"
(Trial 3) (e.g., a girl friend, more money, an A on their report card,
a new car). If we hypothetically assume that there could be 100 plausible
answers to these questions, the a priori probability of "guessing" three
correct answers is equal to 1/100 x 1/100 x 1/100 = p <.000001. Precision of Key Strokes It is noteworthy to point out the high level of precision
that Kenny and his uninformed facilitator demonstrated during sessions.
A measure of precision was calculated from those responses that were
factually correct in Trials 1 and 3, as follows. Factually Correct Statements: DADDDY, MA %TT, JIMMMY, GBASEBALL, UINTHE HOUSE, THEY BROKE A LAMP, MOcTHER, Tc@WO BROITHERS. JIM, A BEBE GGUN, TRADED BAASEBALL CARDS, SHOT IT IN TH=E HOUSE, BROKE A WINDOOW. Factually Incorrect Statements: 13 (correct
answer was 2), A PRESENT (correct answer was a concert ticket),
BOB (correct answer was Tom }, and termination statement of Trial 2
(correct answer was a concert). Partially Correct Statements: 5DOLLARS (complete
answer was $15 plus $5). Across these phases there were 14 incorrect key strokes
out of a total of 149 (including the absence or presence of appropriate
spaces between words), or a precision rate of 90.6%. Moreover, all errors
were either from striking a key immediately adjacent to the correct
key (accounting for S errors), the result of depressing the correct
key too long, resulting in an additional letter (accounting for 5 errors),
or the omission of a space between two words (accounting for I error).
Hence, Kenny and his facilitator were not only precise in the answers
that they offered but also in the accuracy of the spelling and typing
of these answers. Discussion Kenny's performance during this study strongly indicated that he, not his uninformed facilitator, was the source of answers to questions
posed to him, at least during Trials 1 and 3. Moreover, Kenny was using
at least simple inferential abilities to answer (discussed later), not
a form of hyperlexia (Goldberg, 1987) or a learned motor response. He
also demonstrated evidence of a phonemic transformation and a high level
of precision in spelling out his answers, indicative of a phonological
system of spelling. Also, some of the responses during testing with
an uninformed facilitator implied logical inferences, conjectured extrapolations
on a story, and an abstracted ordering in his memory of story elements.
These responses are remarkable in light of his performance without the
use of facilitated communication (i.e., a Stanford-Binet IQ of 31).
Evidence of Inference and Abstractions As reported earlier, 13 of Kenny's responses were factually
correct, 4 responses were factually incorrect, and one question was
partially correct across all three of the sessions. The accuracy and
consistency of these responses indicate that it is highly likely that
Kenny, and not the uninformed facilitator, was the source of answers
about the stories. Moreover, these responses appear to support the notion
that Kenny has the ability to employ at least rudimentary inferential
logic in answers to some of the questions. The questions posed to him
were not directly taken from the transcripts of the stories. For example,
nowhere in the story presentations was the question, "Who was in the
story?" or "How did they get the thing they wanted in the story?" In
order for Kenny to answer these questions, he had to make simple inferences
about the questions. Thus, a "who" question inferred naming a character,
and a "how" question inferred describing an action. Kenny's ability
to inter answers to questions presented in a novel manner indicated
that his responses were not rote due to repetition or some form of echolalic
responding, akin to a savant hyperlexia (cf. Goldberg, 1987) nor a motor
response in which he repeated back a learned sequence of key strokes.
Kenny was primed during the consolidation phase of the story presentation
with questions and responses similar but not identical to those heard
during the test phase. Three observations are worth noting. First, few of
the questions were exactly the same during consolidation and test phases.
Second, Kenny's responses varied to similar questions posed during the
two phases. Comparison of questions and answers during the two phases
(see Table 2) do not read as repetitive production. Indeed, responses
during the consolidation phase were primarily characterized by seemingly
random or missed key strokes that could have been related, at least
in part, to the limited competence of the experimenter/facilitator (the
first author) during this presentation. Third, Kenny's responses during
the test phase could not be explained as a repetition of a previously
learned motor program. The literal stroke-by-stroke transcripts during
the two phases bear little or no resemblance to one another, indicating
that Kenny did not simply "play back" a previously memorized message.
Indeed, the best explanation of these data is that Kenny's correct responses
to questions exemplified at least rudimentary linguistic inferences.
This type of simple inference is not the only evidence
of his abstract information-processing abilities. For example, during
Trial 3, Kenny demonstrated a phonemic transformation. He had previously
been presented with the spelling "B-B" [gun] by the experimenter during
the initial story presentation, but later spelled the word as "BABE"
during the test phase. Though this was an isolated example, it suggests
that Kenny had the ability to produce a phonemic transformation analogous
to "sounding out" the word and indicates that at some level he may be
using a phonological system to spell. Further analysis of Kenny's responses
during the test phases, including "DADDY FORGAVE THEM" (Trial 1) and
"MOTHER WAS MAD" (Trial 3), implies that Kenny may be able to logically
infer information from the events of the stories. Although it is possible
that the uninformed facilitator could have inferred these responses,
as opposed to being authentic responses from Kenny, this seems unlikely.
These inferential statements were consistent with facts in the story
that were not in any way revealed during prior questions and, therefore,
the needed information was not available to the facilitator for her
to "guess." In Trial 1 for example, the character Matt took the blame
for the broken lamp because he feared that his friend Jimmy would not
otherwise be allowed to return to their house. One plausible inference
from this information (presented to Kenny, but not to the uninformed
facilitator) was that Matt's father might be more forgiving if Matt
assumed responsibility. During earlier questioning in the test phase
of Trial 3, there was no indication that the brothers' parents had refused
to allow the boys to have the B-B gun, which supported the inference
that "mother was mad" (as opposed to mother being "forgiving") The indication that Kenny was using higher order processing
of the stories, as well as the authenticity of these statements as his,
gains further support from his demonstration of a conjectured extrapolation
of the story during Trial 1. The story presented to Kenny included the
statement, "It was raining by the time they got there, so they had to
play indoors" (see Table 2). The last question presented to Kenny during
the test phase was "What happened at the end of the story . . . What
was the last thing that happened?" His response was "DADDY FORGAVE THEM
IT STTOPPED RAAIINING." Review of the questions and answers during this
test phase shows that there had been no prior mention of rain with the
uninformed facilitator. Discussion of "RAAIINING" indicated both that
this statement was authored by Kenny, not the facilitator, and that
he was extrapolating on the facts of the story, a fundamentally abstract
processing of information. Kenny also showed memory retrieval consistent with the well-studied information-processing phenomena of primacy-recency effects (Ebbinghaus, 1885, as cited in Rose, 1992). When Kenny was asked "Who was in the story Who else?" he responded with the last characters mentioned
in the story as his first response (e.g., In Trial 1, the order of presentation
of characters was Matt, Jimmy, and Dad. Kenny's response to who was
in the story was "DADDY, MA%TT, JIMMMY). He did not follow
an order consistent with a rote or programmed response. Rather, he abstracted
the order of the characters in the story in a manner consistent with
a primacy-recency effect. Procedural Considerations It is tempting to offer conjecture about why this procedure
or these individuals were able to reveal valid communication with facilitated
communication. However, we find it far too premature to draw any such
conclusions. Rather, we have chosen to highlight for consideration a
small number of factors that may have been relevant. First, there were
several conversations among family and professional staff members working
with Kenny regarding validation from the outset. Kenny was in a climate
in which significant others encouraged validation from his earliest
use of facilitated communication. Experimentally controlled validation
was a priority throughout. Second, as indicated previously, Kenny and his facilitator
had been working together for approximately 30 hours a week for 15
months prior to the first experimental session. During this time
Kenny was involved in a regular education curricula in which he reportedly
took the typical numerous tests given to 6th and 7th graders. The facilitator
related that she often was facilitating Kenny with examination materials
that were unfamiliar to her. It may be that these incidental situations
offered repeated practice opportunities for pseudo-validation testing.
Third, and related to repeated practice, prior to the
current protocol, we set up a number of preliminary opportunities for
Kenny to pass information between home and school that were initially
unsuccessful. However, Kenny began showing valid, though anecdotal,
evidence of information passing with repeated opportunities (see Weiss
& Wagner, in press, for an expanded account of the events leading
up to these validation procedures). No conclusions were drawn from a
single testing. Rather, repeating test sessions was emphasized, and
no apparent pressure was brought to bear in any one session. Practice
with the information-passing strategy may be necessary, a conclusion
that is supported by Cardinal et al. (1996). Fourth, Kenny was always required to look at the keyboard
whenever using facilitated communication. When he would look away, the
facilitator stopped offering the physical support as a natural consequence
and redirected Kenny's attention back to the keyboard. By the time we
were conducting this protocol, Kenny rarely would look away from the
keyboard while being facilitated. Fifth, the test probe information relied on stories with several names, places, and events. Hence, there was a wider scope of answers that could be rendered indicative of valid responding, without a requirement for any one particular answer. Moreover, there were story lines to follow rather than a series of disconnected and individual target responses. Sixth, no distractor conditions were employed in which
the facilitator and Kenny were receiving differing information, common
in other procedures (cf. Green & Shane, in press). The reason that we avoided a distractor-type procedure
was that it would be dissimilar from the common use of facilitated communication.
We believed it prudent and necessary to not tamper with the phenomenon
as it was reported to exist; at least, not yet. Rather, we felt it necessary
to begin with a protocol that allowed for a typical interaction between
Kenny and the facilitator, with modifications such as distractor conditions
to follow later. Seventh, once we had our first successful practice
session in which Kenny passed a small amount of accurate information
(7 months prior to the current protocol), we changed very few factors.
Given that we did not know what the important features of the protocol
would eventually be, we took the prudent measures of "staying with what
worked" and were very slow to proceed with any methodological changes.
During that time we had begun employing the consolidation phase used
in the current protocol and had the experimenter remaining in the room
presenting questions during the test phase. We decided not to change
those strategies in the name of staying with a protocol that seemed
successful, particularly given that we could guarantee that the facilitator
could be kept uninformed of the probe information and that the possibility
of cuing between the experimenter and the facilitator could be eliminated
by having the experimenter always standing behind and out of view of
Kenny and the facilitator with no verbal feedback. A glaring inconsistency from our caution in changing too many variables occurred during the second session of the current protocol. We conducted that session at the home of the facilitator rather than at Kenny's school because we were not able to gain admittance into the school at a time that we could all be present. Whether or not that influenced the outcome, we do not know. However, it reminded us to change as few variables at one time as possible. Our future replications, specifically with Kenny, will likely include staying in one location, modify mg or eliminating the consolidation phase, and having separate experimenters present the initial story and test questions. Finally, we used only one facilitator during the test
phases. Indeed, we were only interested in studying the team of Kenny
and his facilitator in that we did not want to introduce uncontrolled
error variance that may be associated with multiple facilitators. As
our database of validated sessions grows, we plan to both test Kenny
with a new facilitator and Kenny's current facilitator with other individuals
alleged to use facilitated communication. Kenny's experience during this study strongly implied
that he is at least one individual with whom facilitated communication
appears to be a valid method of communication. However, the extent to
which these data generalize either to other instances of Kenny's communication
or to other individuals with disabilities requires further study. That
facilitated communication can exist does not imply that it
is always operative. Witness the fact that during Trial 2, Kenny did
not show valid communication. Therefore, had Trial 2 been the only trial
administered, we would have concluded that facilitated communication
was not a valid form of communication. Results from this study demonstrate
that facilitated communication can be a valid form of communication,
but it remains unclear which variables are necessary for the phenomenon
to appear. Although this is not the only reported case of some form
of validated communication using facilitated communication (Calculator
& Singer, 1992; Cardinal et al., 1996; Crossley, 1992; Heckler,
1994; Intellectual Disabilities Review Panel, 1989; Karp, 1993; Karp
et al. 1993; Queensland Report on Facilitated Communication, 1993; Rimland
& Green, 1993; Sheehan, 1993; Sheehan & Matuozzi, 1994; Vasquez,
1994), the number of carefully documented case reports remains small.
However, contrary to the widely held opinion that there is no valid
support (cf. Jacobson et. al., 1995), it is reasonable to conclude from
the data already available that the phenomenon of facilitated communication
does exist in some fashion with as yet unspecified incidence, validity,
or reliability. Further exploration of the facilitated communication
phenomenon, including in-depth studies of each reported case, as well
as close scrutiny of the facilitators who participated in validated
cases, is paramount to our further understanding of this technique and
the neurologic impairments of those who use it with apparent success.
TABLES:
TABLE 2: Probe Stories, Questions, and Responses During Consolidation and Test Phases. by Test Session
NOTE: The above transcripts are literal accounts of
everything stated aloud by the experimenter (indicated in lowercase)
and typed by Kenny with the assistance of a facilitator (INDICATED IN
UPPERCASE). No other extraneous conversation or feedback occurred during
the procedures. a: presented by experimenter. b: Facilitated by experimenter.
c: Facilitated by uninformed facilitator. d: May 1993. e:June 1993.
f: November 1993. References Biklen, D. (1990). Communication unbound: Autism and praxis. Harvard Educational Review, 60, 291-314. Biklen, D. (1992). Autism orthodoxy vs. free speech: A reply to Cummins and Prior. Harvard Educational Review, 62, :42-256. Biklen, D., & Schubert, A. (1991). New words: The communication of students with autism. Remedial and Special Education, 12, 46-57. Calculator, S., & Singer, K. (1992). Letter to the editor: Preliminary validation of facilitated communication. Topics in Language Disorders, 13, ix-xvi. Cardinal, D. N., Hanson, D., & Wakeham,). (1996). An investigation of authorship in facilitated communication. Mental Retardation, 34 Crossley, R. (1992). Getting the words out: Case studies in facilitated communication training. Topics in Language Disorders, 12, 46-59. Crossley, R., & Remington-Gurney,). (1992). Getting the words out: Facilitated communication training. Topics in Language Disorders, 12, 29-45. Experimental technique may help autistic communicate. (1992, February 16). Sunday Standard-Times, p. A 15. Goldberg, T. E. (1987). On hermetic reading abilities. Journal of Autism and Developmental Disorders, 17, 29-44. Green, C., & Shane, H. C. (in press). Science, reason, and facilitated communication. Journal of the Association for Persons with Severe Handicaps. Heckler, 5. (1994). Facilitated communication: A response by child protection. Journal of Child Abuse and Neglect, 18, 495-503. Intellectual Disabilities Review Panel. (1989). Investigation into the reliability and validity of the assisted communication technique. Melbourne: Department of Community Services, Victoria, Australia. Jacobson, I. W, Mulick, J. A., & Schwartz, A. A. (1995). A history of facilitated communication: Science, pseudoscience, and antiscience. American Psychologist, 50,750-765. Karp, E. (1993, May). Strategies for increasing independent typing. Paper presented at the second annual Facilitated Communication Conference. Syracuse University, Syracuse, New York. Karp, E., Biklen, D., & Chadwick, M. (1993, Nov.). Strategies for increasing independent typing. Presented at the annual meeting of the American Speech-Language -Hearing Association, Anaheim, CA. Kohlberg, L. (1983). The development of children's orientations toward a moral order: Sequence in the development of moral thought. In W. Damon (Ed.). Social and personality development: Essays on the growth of the child (pp.388-404). Queensland Report on Facilitated Communication. (1993). Brisbane, Queensland, Australia: Division of Intellectual Disability Services. Rimland, B., & Green, G. (1993). Controlled evaluations of facilitated communication. Autism Research Review International, 7, 7. Rose, 5. (1992). The making of memory. New York: Anchor Books. Shane. H. C. (Editor). (1994). Facilitated communication: The clinical and social phenomenon. San Diego: Singular Press. Sheehan, C. (1993. May). Validity research: Problems. progress, and alternative explorations. Presented at the second annual Facilitated Communication Conference, Syracuse University, Syracuse, New York. Sheehan, C., & Matuozzi, R. (1994, May). An investigation of the factors influencing the validity of facilitated communication. Presented at the third annual Facilitated Communication Conference, Syracuse University, Syracuse, New York. Sparrow, S. S., Balla, D. A. & Cicchetti, D. V. (1984). Vineland Adaptive Behavior Scales- interview Edition, Survey Form. Circle Pines, MN: American Guidance Service. Vasquez, C. A. (1994). Brief report: A multitask controlled evaluation of facilitated communication. Journal of Autism and Developmental Disorders, 24, 369-379. Weiss, M. J. S., & Wagner, S. H. (in press). Emerging
validation of facilitated communication: New findings about old assumptions.
In D. Biklen & D. Cardinal (Eds.), Presuming competence: Empirical
investigations of facilitated communication. New York: Teachers
College Press. Received 3/6/95, first decision 6/21/95, accepted 11/18/95. Editors in Charge: Dianne Ferguson and Phil Ferguson
Funding for this project and preparation of this manuscript
was supported by Behavioral Pediatrics & Family Development, Inc..
We gratefully acknowledge the assistance of Brenda Silva and the Affonce
family for their on going support and participation. We also thank Doug
Biklen, Anne Donnellan, Paul Haskew, and Martha Leary for their comments
on this project. Requests for reprints should be sent to the first author.
Authors: MICHAEL J. SALOMON WEISS, Ph.D., Consulting and Clinical Psychologist and Co-Director, and SHELDON H. WAGNER, Ph.D., Consulting and Clinical Psychologist and Co-Director, Behavioral Pediatrics and Family Development, 205 Rawson Rd., Brookline, MA 02146. MARGARET L. BAUMAN, MD, Assistant Professor, Department of Neurology, Massachusetts General Hospital, Harvard University Medical School, Boston, MA 02114. |
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